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Margaret Hall has come up against one obstacle after another in her quest to obtain a van fitted for wheelchair access for her son, Glenn.
But now things may be looking up.
At least, the ball is rolling in that direction she said.
“We had a meeting at church last night and everybody was very kind, and said they would be willing to help with some different events,” she said.
Hall had entered a contest in May to win a fully equipped van with wheelchair access, but did not win.
Hall’s 14-year-old son Glenn was born with a rare chromosomal disease, partial trisomy 6Q, and is confined to a wheelchair. Partial trisomy 6Q is an extremely rare chromosomal disorder in which a portion of the 6th chromosome is present three times rather than twice in the cells of the body. Many affected infants and children have slow physical development, mental retardation, malformations of the skull and facial region and abnormal bending or extension of certain joints in fixed postures along with other physical abnormalities.
Glenn is currently recovering from a surgery he had at Kosair Children’s Hospital on June on both of his knees.
His mother said his spirits are up, though, and hers are too, because the tone of the discussion was optimistic Thursday night at First Christian Church, where a group of about 40 people have organized into a committee to help raise money for the van.
Tony Carriss, magistrate in District 6 in Mount Eden, recently organized what he calls the “Van for Glenn” committee, to brainstorm and hopefully come up with fundraising ideas for the Halls.
Now, he said, Shelby County Community Charities has jumped board, also, the same entity that held fundraisers to help some local people, Savannah Sanders and Robbie Phillips, with medical procedures.
Carris said some events that are being planned so far is a bake sale and cook out at an upcoming downtown street party, a dinner and a silent auction, and some other things.
“Also, my granddaughter, Kendra [Jackson], she’s eight years old, and she has donated all the money in her piggy bank, that she has got from the tooth fairy, and other things, to Glenn,” he said. “And she issued a challenge last week to the community to do what they can, too, and so far, we have collected fourteen hundred dollars.”
A family friend, Allie Hembree, said she has made up some flyers that she is post around town about Kendra’s efforts to help.
“They will say, ‘Kendra gave fifty-six dollars, what can you do?’” she said.
Hall said she is overwhelmed with gratitude about how the community has come together to help her son.
“Everyone has just been so great,” she said.
Carriss said it’s the group’s hope to be able to raise the $30,000 needed to purchase the van by Christmas Eve.
“That’s our goal,” he said.
To follow the progress of the group’s fundraising efforts, visit www.facebook.com, Van for Glenn.
How you can help
Make checks out to:
Shelby Co. Community Charities
P.O. Box 284
Shelbyville, KY 40066