Dystonia event Saturday

Having a rare disease is scary. Having doctors not know how to treat you can be terrifying.

Just ask Jennifer Heil. Before she was being properly diagnosed with Dystonia, Heil went to see four doctors and lived through months of pain.

Dystonia, which is a neurological disorder that is characterized by repetitive muscle contractions, can cause the twisting and jerking movement of the body.

Heil said the disease causes all of the muscles in her face, neck, back and stomach to constrict.

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